Tuesday, January 12, 2010

A Future without Down Syndrome?

Coinciding with Berenike's post about the Little Sisters Disciples of the Lamb, a surprising (and hopeful) article introducing an unlikely new cohort of advocates for children with Down syndrome.  An exceprt:

Rachel Adams, a professor of English and American studies at Columbia University, is one of the special-needs parents whose ranks may dwindle in coming decades. She was studying the history of disability in popular culture for years before she gave birth to her son Henry, now 2. Still, learning her newborn had Down syndrome was “the biggest shock of my life,” she says. “A tremendous shock.”

Adams describes herself as a pro-choice feminist, a woman who wouldn’t want to deny any other woman the choice of whether to carry a pregnancy to term. But she’s also committed to giving expectant parents a more hopeful view of what it’s like to be a mother of a child with Down syndrome. This spring, she and a friend will be giving talks to genetic counselors about how they can more sensitively deliver the news that a fetus has Down syndrome, without steering couples toward termination.


berenike said...

I found some more stuff, and a Franciscan-inspired community for men with Down's, also in France, and have stuck up links.

Pentimento said...

Thanks, Berenike.

Berenike's site is