Thursday, January 19, 2012

"Those that we call monsters are not so to God"

My friend and reader Ex-New Yorker sent me a link a while ago to an op-ed piece in the New York Times by Emily Rapp, a memorist-mother whose toddler son, Ronan, is dying of Tay-Sachs disease. If you click over to the link, you will see what an almost-celestially beautiful boy Ronan is; nevertheless, the progression of his disease means that he is losing all of his senses and abilities -- by this time, he has become blind -- and that he will likely die in a vegetative state before his third birthday.

I check Emily Rapp's blog, Little Seal, occasionally (the name Ronan means "little seal" in Irish), and found a powerful post there today which refers to Michel de Montaigne's essay "Of A Monstrous Child," in which the Renaissance humanist describes seeing a grotesquely-deformed toddler being exhibited by his caretakers as a begging lure. Montaigne surprises the reader by concluding that it is the shock and horror that men express when they encounter something so outside of the ordinary that is contrary to nature, and not the thing itself. As Rapp notes:


The burden . . .  falls on the looker, and the looker is held accountable for the lens through which she sees – and sorts – the world. I love the way Montaigne makes that child . . . extraordinary in the truest sense: brilliant and shiny.  The thing you want most to pick up when it glints at you from the street. The man born blind in the Gospel of John did not exist to make people feel grateful for their vision; the text is very clear that he, in fact, possessed the vision that others did not. That his was a looking that saw wonder, saw God, when others did not.

Rapp also references a politician who has stated publicly, as she puts it, that "disabled children are a woman’s punishment for having abortions in her sullied, slutty, ho-bag past." There is no comment worthy of this perversion of the Christian proclamation, but it is germane to note that it directly contradicts the passage in the Gospel of John mentioned above:

As he went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”

“Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him.

As Rapp says of the man born blind, "His body was not a punishment; it was a kind of divine revelation."

This reminded me of the assertion of Gerard Nadal, bioethicist and father of an autistic child, that the huge spike in autism diagnoses is taking place so that we may truly learn how to love. It reminded me, also, of the passage in Saint Faustina's diary in which she suggests that God the Father regards the world and its creatures through the wounds of His Son. May we learn to look at each other that way, too.

5 comments:

Radical Catholic Mom said...

I wish you would cross post more over at VN. This would be so fabulous over there.

This post is so beautiful. I especially like your last line about us learning to view the world through the wounds of others. Have you ever seen the Spanish movie, Todo Sobre Mi Madre. All About My Mother? It conveys a similar message. And I know that after all that I have gone through with my daughter, I now see wounded people in a very very different light. Before I was very judgmental, but now? Not so much.

Pentimento said...

I haven't seen the movie, RCM, but I'll look for it on Netflix. Actually it's a good idea to cross-post this one. Thank you for suggesting it. Today is my son's birthday party but I'll get to it when I have a chance.

Radical Catholic Mom said...

A very happy birthday to your son & I am so glad you x-posted :) Makes me happy.

Pentimento said...

Thank you, RCM!

Mrs C said...

Amen sister.